On Tuesday afternoon, we will have a closer look at data management. The afternoon session will begin with three parallel sessions concentrating on different themes: data management on national level in the Nordics, sensitive data and data management and climate research and data management. The participants are able to choose which track to follow when registering to the conference.
After the three tracks, we will have a coffee break and then gather for a panel discussion to address common challenges and solutions related to data management.
Track 1: Data management on national level
This session will provide an overview of the national DM initiatives, ambitions, challenges and best practices.
Chair: Birte Christensen-Dalsgaard (Chair of the national Data Management Forum, DK)
Speakers: Francesca Iozzi (Sigma2, NO), Sofie Björling (Vetenskaprådet, SE), Anders Conrad (DeiC, DK), Ebba Þóra Hvannberg (University of Iceland, IS), Antti Pursula (CSC, FI)
Track 2: Sensitive health data & data management
This session will provide an overview on the Nordic sensitive data services and some potential challenges and use cases
Session Chair: Abdulrahman Azab (NeIC Office/UiO, NO)
Speakers: Eivind Hovig (UiO, NO), Maria Nilsson (NordForsk), Peter Løngreen (Director of the Danish National LifeScience Supercomputing Center, DK), Gard Thomassen (UiO, NO)
Agenda:
13:00 - 13:20 Sensitive health data: the interface between clinical and scientific research - Peter Løngreen
13:20 - 13:40 Towards implementation of cross-country precision medicine - Eivind Hovig
13:40 - 14:00 The Nordic Commons Project - Maria Nilsson
14:00 - 14:20 Research and possibilities enabled through TSD - Gard Thomassen
14:20 - 14:30 Q&A
The Nordic Commons Project
The vision of the Nordic region as a forerunner in secondary use of health data in research, innovation, industry, and healthcare was manifested in a NordForsk report in 2019. It was envisioned that a “Nordic Commons”, where health data could be identified, shared, compiled, and jointly analysed for secondary purposes in a federated, secure, scalable environment would be of future benefit of public health and the Nordic societies.
The recommendations of the Nordic Commons report have been assigned for further action to a project funded by the Nordic cooperation ministers (MR-SAM) and the Nordic Council of Ministers for Health and Social Affairs (MR-S). The project has recently been kicked off and the next steps will be presented.
Track 3: Climate research & data management
A series of lightning talks from speakers with a range of experiences. The talks and discussion will focus on the most important factors motivating and/or hindering the uptake of FAIR principles in the Nordic climate community.
Chair: Hamish Struthers (NSC, SE)
Session speakers: Adil Hasan (NIRD & Sigma2, NO), Anne Claire Fouilloux (UiO & NeIC, NO), Franziska Hellmuth (UiO & NeIC), Hamish Struthers (NSC, SE), Karsten Peters-von Gehlen (DKRZ, DE), Oskar Landgren (MET, NO), Bert Meerman (GO FAIR Foundation, NL)
Panel discussion
The discussion would go in the direction towards cross-disciplinary and cross-border data and service interoperability. The key focus of the panel debate will be towards the following two questions:
- What is the most important activity or initiative in your field securing cross discipline & cross boarder interoperability?
- What do you see as the next challenge and how do you plan to address it?
Moderator: Birte Christensen-Dalsgaard (Chair of the national Data Management Forum, DK)
Speakers: Mari Kleemola (University of Tampere, FI), Anders Conrad (DeiC, DK), Peter Løngreen (Director Danish National LifeScience Supercomputing Center), Sara Garavelli (Director, EOSC Association), Anne Claire Fouilloux (UiO & NeIC, NO), Malvika Sharan (Alan Turing Institute, UK)
