27–29 May 2024
Park Inn by Radisson Meriton Conference & Spa Hotel Tallinn
Europe/Tallinn timezone

Workshop: Sensitive data - Opening and sharing of personal data: ethical and legal issues and solutions Part I

29 May 2024, 13:00
1h 30m
Peterson Hall

Peterson Hall

Speaker

Enrico Glerean

Description

When working with personal data, the General Data Protection Regulation (GDPR) poses a challenging situation for European researchers: the protection of the personal data of the study subjects can limit the transparency and sustainability of the scientific process by restricting data sharing and reuse. In recent years, national legislation have regulated the reuse of data originally collected for medical purposes, but the process for sharing non-medical research personal data is still unclear.

The workshop aims to identify ethical and GDPR-compliant solutions for sharing research personal data with the global scientific community. During the workshop, we will present some existing solutions and show how to adopt them in practice. Participants are encouraged to share their ideas and experiences to explore a wide range of available options, especially in the Nordic countries. The aim of the workshop is to produce a whitepaper towards a unified process for sharing personal data in non-medical research.

Presentation materials

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